Parents of neurodivergent (and/or disabled) children live every day the fragile balance hidden behind each day.
Medical appointments, therapies, constant adaptations… All of this is a full-time job on top of everyday life.
Every change, even small, can trigger a storm (anxiety, regression, exhaustion). This is not an “excuse,” it’s a physiological reality…
So when we say “no” to an activity or advice you give us, it’s not from lack of will, but because we weigh every decision as a risk.
No need to tell us we’re not doing enough when we’re already giving 200%.
No need to tell us our child “has a problem.” We know, it’s our challenge.
I understand your anger, you feel powerless. Well, that’s us, every day.
Welcome to our lives.
I truly feel your discomfort. Our challenges are so far removed from your lives that, faced with our realities, it is natural for you to seek solutions.
It is a touching intention.
But that is not always what we need. Sometimes, there is no solution, advice, or “best practice.” Sometimes, we just have to accept reality, including our exhaustion.
When we tell you this and you become defensive or even accuse us, you become yet another emotional burden in our daily lives.
Sometimes, all we want is to talk about our realities with the people we love.